© 2019 by Gould Syndrome Foundation

Cleveland, Ohio, U.S.A.

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Tel: 1-866-766-3311


Sheena McGee, Founder and Director

Sheena McGee started the Gould Syndrome Foundation, on the floor of her living room just 11 months after her daughter, Zeeva's 14th operation. She knew there was a distinct need for medical and scientific collaboration for this rare community she was a part of through her daughter's COL4A1 diagnosis. In addition to homeschooling Zeeva, and running the Foundation, Sheena is a small business owner of an Interior Design firm with a focus in residential accessibility. 

Sheena serves as the Vice Chair's Board of Directors at MAHO (Maximum Accessible Housing of Ohio). She also Chairs their Anderson Center Committee and the Strategic Planning Task Force.

She received her BA in Interior and Environmental Design from Syracuse University and minored in Fine Arts History with a Concentration in Architecture. She received her Board Certification in Patient Advocacy in 2019 with the desire to help share all she has learned navigating the complex medical rare disease life. Sheena resides in Cleveland, Ohio with her husband Jason, her eight year old daughter Zeeva, and their dog, Sir Dublin.

Sara-Ellen Burnett, Vice Chair

Sara- Ellen Burnett, attended Stetson University, where she studied European History with a focus on World War II.

Directly following, she moved to Saint Petersburg, Florida, where she has resided for the last fourteen years.

Sara-Ellen is a small business Owner/Operator of The Lay Low Chateau Hospitality LLC., a private dining company specializing in haute cuisine. 

In addition to being the Vice Chair of Gould Syndrome Foundation, she currently serves on the Board of Directors of two additional 501(c)3 nonprofits in Saint PEtersburg. Her time is additionally spent volunteering with local non-profits relating to both art and the growth of the self-sustaining food community.

Jason McGee, Treasurer

Jason has spent 14 years in Sales Management and 11 years in Investment Services/Retail Banking where he has served as a mentor and held many leadership roles within his organizations.  He currently has professional licences of Series 6, 63 and also his lIfe and Health.  He also has more than 15 years experience in Property Management.  He earned a BSBA from John Carroll University with a major in Marketing in 2003.  

Since the birth of his daughter and her Gould Syndrome, CP, Microphthalmia, and Epilepsy diagnosis, he has been driven to advocacy and education.

His volunteer activities include adapted sports coach, Certified Financial Educator for middle school students, and not-for-profit volunteer days. 

Catherine Fauls, Secretary

Catherine Fauls, licensed PT specializing in geriatrics and post surgical rehabilitation joins the Board with extensive knowledge of the physical human body and therapeutic modalities. She has spent time volunteering and fundraising at her Children's Inc, a large 501(c)3 that specialized in Childcare and development across greater Kentucky and Ohio.  Her free time is spent with family (her husband John, two sons, Liam 8 and Max 5) and friends and her new labrador Murphy.

Brian Corrigan, Board Member

Brian is a Case Management Associate at United Cerebral Palsy of Greater Cleveland in
the Leafbridge Therapy Department. He assists families in navigating the challenges they face in day to day life while advocating and providing services for their children with varying disabilities.

Brian sits on the Maximum Accessible Housing Board of Directors. This allows him to pursue issues surrounding fair housing for all individuals and educate others on the needs of individuals within the disability community.

Brian participates in the Cleveland Clinic Developmental Disabilities- Practice Based Research Network. The Network is comprised of professionals who work within the disability field. The group works to enhance the healthcare system and experiences of individuals with developmental and cognitive disabilities.
Brian graduated from Baldwin Wallace University with a Bachelors of Arts degree in
Communications (2014) . He joined the Gould Syndrome Foundation (COL4A1/A2) to help
bring attention to the syndrome, to benefit all the children and adults who fight everyday to live and have a normal life despite their challenges. His personal love for a child with the condition sparked his interest and involvement in the group. Brian resides in Cleveland Heights, Ohio.

Sara Reddick, Board Member

Sara Reddick is the co-owner of Torin Productions, a video production company, in Portland, Oregon. She has a college background in creative writing, editing and grant writing. She spent 15 years of her professional career as a Holistic Nutrition Therapist and Personal Trainer. She joins the board of the Gould Syndrome Foundation as a bereaved parent. She is a mom of 2 children, one who had COL4A1, and died at the age of 2 due to respiratory failure directly related to complications of the disease. Her experience and professional expertise offers our board perspective into the seriousness and unpredictable nature of the COL4A1 mutation through the eyes of a mom. She hopes to help raise awareness, provide parent and caregiver support, and make strides to offer better treatment options for those born with this genetic mutation.

Naomi Singleton, Board Member

Naomi Singleton having Gould Syndrome knows firsthand what some of the struggles patients and families go through; having special insight on controlling some of the symptoms that come with this disease, she helps families find answers to various questions and needs. Naomi has been volunteering with nonprofits for years, eventually focused on work within the special needs and medical community. She strives to be a novelist in the future, and to help further research to find a cure.

Donald Burnett, Board Member

Donald Burnett is a Florida native, from Siesta Key. He is an Executive Chef of a noted restaurants in Downtown Saint Petersburg, Florida. He spends his free time extensively volunteering in the non-profit realm; feeding those in need in the greater Tampa Bay area and training young chefs in at-risk communities.

He hopes to expand his knowledge, and likewise, share details of the Gould Syndrome Foundation by serving on the Board.